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Fast-Track Cities HIV anti-stigma work

Working together as a city to get London to zero HIV stigma

Despite all the advances in clinical care, we know that for people living with HIV life can be difficult because of stigma around HIV.

HIV stigma is often based on outdated ideas about HIV and made worse by discrimination in other areas like gender, sexuality or race.

We know that in order to get us to zero new cases of HIV, zero preventable deaths and 100 per cent of people living well, we must fight stigma. We have a pot of money to help us tackle stigma as a city over the next three years.

In 2019 the Fast-Track Cities London Leadership Group set up a stigma group to look at the current evidence on stigma, review existing work and draft an action plan. This stigma group has a range of people on it from the voluntary sector, statutory agencies, the NHS, local councils, academics and people living with HIV.

The stigma group described three key areas we need to focus on. A joint focus on these areas will speed up London’s response to ending stigma. The change model looks to address internal and external stigma at the same time.

In December 2019 the stigma group shared the draft action plan and asked for feedback. We heard from over 100 people and agencies about what London should do to end the stigma around HIV.

 

Read the updated stigma proposal for London here:

Updated anti-stigma proposal for London March 2020

 

Read more about what we did and what people said below:

Appendix A: How did we get feedback

Appendix B: Summary of what people told us

Appendix C: Results of fact finding survey on what work already exists in London

 

Next steps:

For all of the next steps below we will be guided by the values set out in the updated proposal document.

Internal stigma: We will create a course outline. The course will be adaptable for different communities, cultures and contexts. We will develop the course with HIV organisations and people from the community. We will then invite organisations to bid to deliver the course to the people they serve.

Stigma in the NHS and other public services: We will commission an organisation to create an HIV-friendly charter. The charter will include a training pack and a communications pack. This organisation will use a design group to inform the process. The design group will be made up of representatives from the community, NHS organisations, Health Education England and others. The organisation will pilot the charter in a few NHS organisations to test the charter, and to learn from its development.

Stigma in society: We will commission work to set a baseline on the public’s knowledge and attitudes to HIV. We will use the support of marketing professionals and people with social movement expertise. The stigma group will invite organisations that run existing campaigns to get involved. We will develop a hashtag for this work, so that we can track and evaluate how the message spreads.

We want to keep everyone up to date with this work and need people to get involved, so please email us at hlp.londonftci@nhs.net.

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