Asthma is the most common long-term medical condition affecting children and young people. 1 in 10 children and young people are affected by the condition, meaning 240,000 have asthma in London. Many have badly managed asthma – to the extent that 4,000 are admitted to hospital with asthma every year and 170 have such a severe episode that they require admission to intensive care.
Why this is important
At the worst end of the spectrum, around 12 children and young people die of this disease in the capital every year. Poorly controlled asthma affects every aspect of children and young people’s lives – their ability to learn, enjoy time outside the school with friends or take part in sport. It affects their time with their families and how they sleep.
What we are doing to tackle asthma in London
- We have developed a set of ambitions for how asthma care should be delivered across the city.
- The London asthma standards for children and young people bring together these ambitions for London with national and local standards.
- The online London asthma toolkit is available to support healthcare professionals, commissioners, schools, parents, carers, children and young people in London implement the asthma standards for children and young people.
- Research to understand preventable factors involved in an asthma attack is also underway as part of an audit of asthma attack incidences in general practice, urgent care centres and A&Es.
- Our work to transform the care of children and young people in London with asthma through the development of the London Asthma Standard has been published in NICE’s Shared Learning Collection as a supporting resource for others to learn from and can accessed here.
The Digital Health Passport pilot was commissioned by the Healthy London Partnership (HLP) to enable sharing of care plans and to support self-management of chronic conditions like asthma in response to Coroners Section 28 notices on child deaths from asthma. It is developed by Tiny Medical Apps and co-produced with young people, school nurses, GPs and asthma specialists, the app can be downloaded from the NHS Apps Library. It is a personal health record and assistant that enables young people aged 13-21 years old to take control of their health. It contains a digital asthma action plan and method of tracking symptoms that the young person can choose to share with their healthcare team if they want to. Asthma action plans can also be shared with school nurses, parents and carers. It is designed to make long term conditions easier to manage.
The app can be downloaded from the NHS Apps Library
The final report and recommendations can be found here