National Cancer Patient Experience Survey
The National Cancer Patient Experience Survey (NCPES) is an important part of the national NHS Cancer Programme, which places patient experience on a par with clinical effectiveness and safety as a key strategic priority. It has been designed to monitor progress on cancer care, to drive local quality improvements, to assist commissioners and providers of cancer care and to inform the work of various charities and stakeholder groups supporting cancer patients.
The survey is overseen by a national Cancer Patient Experience Advisory Group. This Advisory group set the principles and objectives of the survey programme and guide questionnaire development. The service is commissioned and managed by NHS England. The implementation of the survey is lead by Picker.
The Transforming Cancer Services Team for London has published an analysis of the results from the 2019 National Cancer Patient Experience Survey for each London Clinical Commissioning Group, Integrated Care System and hospital to help improve cancer care for patients.
The 2019 survey was sent to all NHS patients aged 16 and over who had received a confirmed primary diagnosis of cancer or been discharged from an NHS Trust after an inpatient episode or day case attendance for cancer related treatment in April, May and June 2019.
The Transforming Cancer Services Team has produced an interactive dashboard, which includes reports on the results and analysis for each London Clinical Commissioning Group as well as for the corresponding Integrated Care System.
The dashboard enables commissioners, clinical leaders and the public understand the cancer patient experience in their locality by reviewing the patient experience data alongside the qualitative analysis.
National survey background
The national survey was sent out between December 2019 and March 2020. Questionnaires were sent by post with two reminders where necessary, with an option to complete online. A Freephone helpline was available to provide access to a translation and interpreting facility.
The national survey has been running since 2010, however the 2019 results should only be compared with the results of the 2015 – 2018 surveys owing to major changes to the questions and scoring to the previous surveys.
The 2019 NCPES Trust and Clinical Commissioning Group results were released on 25 June 2020 and are designated Official Statistics.
The TCST analysis of the results and recommendations regarding the results are displayed on Tableau: an online data visualisation tool. The analysis and data is available for each Clinical Commissioning Group, Integrated Care System and Cancer Alliance in London.
There are 52 scored questions on the survey.
Unadjusted data is used in this report as this scoring shows actual patient percentage scores.
For unadjusted and adjusted scores at national, Trust, Clinical Commissioning Group and Cancer Alliance levels, when the base size per question was< 21, the score was suppressed and replaced with an asterisk(*).The base size included only positive and negative response options.
Where results are presented at response option level, questions where the number of respondents selecting a given option was not 0 but less than 6 were suppressed and replaced with an asterisk(*). This is to minimise the risk that the results could be disclosed. All other response options, which could be used to calculate the suppressed number, were also suppressed. This suppression rule did not apply to all neutral response options
The following questions scores are not published: 3, 4, 8, 9, 26, 29, 42, 45, 48.
National Cancer Patient Experience Survey and Ethnicity Analysis
For the first time, the Transforming Cancer Services Team has undertaken analysis of the National Cancer Patient Experience Survey results and compared responses from:
- London BAME cancer patient experience with London White cancer patient experience.
- London BAME cancer patient experience with England BAME cancer patient experience.
Of the 52 questions analysed:
- 27 questions showed that the London BAME cancer patient experience was statistically different to the London White cancer patient experience.
- 3 questions showed that the London BAME cancer patient experience was statistically better than the London White cancer patient experience.
- 2 questions showed that the London BAME cancer patient experience was statistically different to the England BAME cancer patient experience.
- 1 question showed that the London BAME cancer patient experience was statistically better than the England BAME cancer patient experience.
The Transforming Cancer Services Team will be working with its stakeholders across London to delve further and work collaboratively to address these inequalities.