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Patient experience survey

Results and analysis from the 2017 National Cancer Patient Experience Survey for London CCGs

The National Cancer Patient Experience Survey aims to improve a patient’s experience of their cancer care and to inform commissioners and service providers about the cancer patients’ experience.

The Transforming Cancer Services Team for London has published an analysis of the results from the 2017 National Cancer Patient Experience Survey for each London CCG and STP to help support commissioners in their work to improve cancer care for patients.

The 2017 survey was sent to all NHS patients over the age of 16 who had received a confirmed primary diagnosis of cancer or been discharged from an NHS Trust after an inpatient episode or day case attendance for cancer related treatment in April, May and June 2017.

The Transforming Cancer Services Team has produced an interactive dashboard which includes reports on the results and analysis for each London CCG as well as for the corresponding STPs.

There are 50 questions in the national patient survey. The cancer team analysed each CCG’s results against 36 of the questions, selected for the effect a poor score has on a patient’s short and long term health and wellbeing.

The dashboard enables commissioners, clinical leaders and the public to have an understanding of the cancer patient experience in their locality by reviewing the patient experience data alongside the qualitative analysis. The reports show the relevant CCG score, STP score and scores for the other CCGs in the STP for benchmarking, for each of the selected questions.

The 36 questions are grouped into eight categories.

  • National cancer dashboard questions
  • Early diagnosis
  • Decisions regarding treatment
  • Access to a Clinical Nurse Specialist
  • Support and finance
  • Discharge
  • Living with and beyond cancer
  • Support from health and social services.

These categories have been chosen to show how different questions, when seen together, indicate an overall effect on a particular aspect of a patient’s experience.

London findings

Across London 92% of patients were given the name of the clinical nurse specialist who would support them through their treatment. However it should be noted that in some CCGs there was a 10% differential in the score for patients finding it easy to contact their clinical nurse specialist.

In London 84% of patients were given information about support groups. 85% of patients in London were given clear written information about what they should or should not do after discharge; however only 55% of families or someone close to the patient were given all the information they needed to help care for the patient at home.

93% of patients across London were told who to contact if they were worried after discharge.

Areas of concern

There were poor scores across all STPs for:

  • Patients receiving information regarding the side effects of treatment both in the short and long term, as well as patients receiving information on getting financial help. Patients did not feel supported by health and social services. A very low number of patients were given a care plan.
  • 26% of patients saw their GP more than twice before being referred and 29% of patients did not understand what was wrong with them.

National survey background

The national survey was sent out between October 2017 and March 2018.

Questionnaires were sent by post with two reminders where necessary, with an option to complete online. A Freephone helpline was available to provide access to a translation and interpreting facility.

The national survey has been running since 2010 however the 2017 results should only be compared with the results of the 2015 and 2016 surveys, due to major changes to the questions and scoring to the previous surveys.

Accessing the results on the dashboard

Open the dashboard in Google Chrome or the latest version of the web browser that you are using.

The dashboard is best viewed in full screen mode.

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